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Ideas and inspiration for your important relationships.

Tales from A Special Needs Mom

Invisible_fenceRaising a child with disabilities is like living in a yard with an invisible fence.

The trouble with an invisible fence is that you only learn where the perimeter is when you make the mistake of crossing the unseen barrier and get zapped by life telling you that you aren't allowed to go there.


Maybe it's a place like a preschool that doesn't want your child. Maybe it's a friendship that fades away as your lives take different paths. Maybe it's an expectation - like how holidays will look or what activities your family is going to participate in.

pile_of_mailNote: This article first appeared in A Different Path in 2002. It is one of my favorite pieces because it speaks to the challenges of grief when it is not as clear cut as sadness from an actual death.  Loss is tricky...

Recently, as I sorted the regular pieces of mail with its usual mixture of bills, catalogs and credit card offers, I was caught off-guard by an application from the town sports league inviting my 11 year old son to join a youth basketball team.

Sometimes when things like this happen I can just shrug them off, understanding that his name was just on a list like all the 5th grade boys in town. But other times it knocks me over. And the awareness that he is so not like other 5th grade boys brings me to tears.

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